To me there is such a large gap between what we hear and what we see. The majority of specialists who have provided their data on this site or are with nationally recognized programs reflect results that are much better than those listed on SEER. As we have discussed on this site before, their are many possible causes for this anomaly, but all of them combined represent a possible 10 or 20% difference, but not 100 to 500% difference. I again make the case that it can only be the quality of care, and as a result I believe as do most myeloma specialists, that all multiple myeloma patients should have a multiple myeloma specialist on their team to narrow the gap between what they hear and what they experience.
God Bless all who have to be on this multiple myeloma journey/ email@example.com