Multiple Myeloma - Survival Rate Statistics by Hospital
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Multiple Myeloma Survival Finally Improved To 5 Years!  Yeah!!! And In Two More Years It Will Reach 6 Years, BUT

4/17/2016

12 Comments

 
If you are a myeloma patient, you have to love this news.  When I was diagnosed there was little data available, but I do remember a Mayo publication which said the average life expectancy was 33 months and had not changed in a decade.  The new patients can now look at the new data represented in the graph below, and it looks as though the sky is the limit for survival.  And if you are lucky enough to make it through the first 2 years after diagnosis, the sky IS the limit.  We unfortunately still lose 30% of patients in the first 2 years, and this has not changed much in the last 10 years.  This has everything to do with late diagnosis, inadequate treatment for the newly diagnosed patients. I will leave further discussion on this subject to another post.  But now let us celebrate some outstanding news.  For the new SEER data published on 4/15/16 CLICK HERE.
Picture
On a blog post last year I predicted this would be the year life expectancy reached 5 years, and you can view my prior prediction if you CLICK HERE.  My new prediction is that in two more years life expectancy will increase by another year to 6 years.

Below is a look at the history of the survival for myeloma in the USA and my prediction. 

year                                  survival milestones        years between milestones

1975                          2 years                               -

1998                          3 years                             23

2004                          4 years                               6

2008                          5 years                               4

 

2010 (prediction)       6 years                               2



As you can note in the graph and list  above, the pace of change has increased significantly to where we are improving life expectancy by one year, in just  two years.  Whereas, it took 23 years to improve survival by just one year in 1975.  And if you have not noticed, the drastic increase in the rate of improvement started in the early 2000's which coincides with the development of  IMID,s (Thalamid, Revlimid) and the PI (Velcade).

With 4 new drugs approved for myeloma in 2015, and two of them representing a new class of drugs (checkpoint inhibitor and monoclonal antibody), we can expect continued improvement for the patients who are fortunate enough to be diagnosed in a timely fashion. The 30% who do not make it 2 years will not share in this because of late diagnosis, wrong diagnosis, and poor first line treatment.  More on this subject later.


Good luck and may God Bless your Cancer Journey.   For more information on multiple myeloma survival rates and treatments CLICK HERE and you can follow me on twitter at: https://twitter.com/grpetersen1




12 Comments
Brian Helstien
4/18/2016 09:16:12 am

Gary,
As a runner, I was getting winded at the beginning, not end of runs (and frequently had a bloody nose to boot) for the better part of a year prior to diagnosis. I actually "knew" I was sick (but guessed something entirely different). Men (at least in the US) are notoriously stubborn and don't "go to the doctor" for every little thing. I would expect that women would have an overall longer survival time FROM DIAGNOSIS only because our gender tends to be more stubborn, and thus is sick much longer prior to formal diagnosis. Is there any breakout by gender amongst these statistics?

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Gary Petersen link
4/18/2016 09:55:30 am

Brian, you called it! I had to look but you can find it on the web but the 5 year life expectancy for men is 47% and for women it is 52.4% or 10% better for women. If you have not heard as yet the whole county of Greenland will be testing all of adults over 40 for myeloma, or MGUS. No one will be surprised anymore there, and I expect life expectancy from the disease will more than double. Late diagnosis is the biggest myeloma killer now.

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Bill Conley link
4/19/2016 05:17:16 am

My wife Liz was diagnosed with Multiple Myeloma 4.5 years ago and is currently in remission. Liz along with her friend Jenny who also has Myeloma have created a fantastic website for anyone needing information about the disease, myelomacrowd.org. Last year they raised $500,000 for clinical trials and Jenny just was awarded one of 8 hero's in the Myeloma community by Cure Magazine.

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Gary Petersen link
4/19/2016 06:35:01 am

You are a lucky man, Liz and Jenny are a great team and have done so much in a short time for the myeloma patient community. I recommend all myeloma patients visit www.myelomacrowd.org and find out about the MCRI myeloma cure initiative.

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MIchel Sooriah
8/11/2018 10:01:03 pm

Hi,
Thks so much for your very good work done for the Hyeloma family. I am a 57 yrs old Mauritian small island in the indian ocean. I learned about my case some 1 month ago. Like all patients I want to collect all useful infos mainly life expentency.
Regards and thks for your help.
M. Sooriah

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Jenny link
4/19/2016 10:54:31 am

Bill, We've raised $185,000 so far with a $500,000 overall goal. Initial funds have been contributed so far to the two projects and we are thrilled at the projects we chose. Getting significant validation from all of the docs and research that the CAR T cells and the MILs approach are making real differences. Our process worked with the help of both doctors and patients!

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David Langston
4/24/2016 11:13:32 am

From the slope of the survival curve, something changed on or after 1999. Thalidomide was first used in 1999. Velcade was FDA approved in 2003. So it would appear that novel drug treatments, not more use of SCTs or more use of old line chemo drugs, changed the rate of improvement in the survival odds. Without novel drug treatments, it appears the 5-year survival rate would probably only be about 35% or so now.

I hope the newer salvage drugs are as successful in increasing the slope of the survival curve as the original novel drugs were.

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Gary R Petersen link
5/13/2016 11:40:04 am

David, that is my hope as well. With two new classes of drugs I would hope we can keep the slop going up. Gary

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robert lewy
7/5/2016 08:31:48 am

great resource didnt have to see 1000 places in 3 years

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Jack Aiello
7/5/2016 08:36:02 am

Hi Gary, Re the high 2-yr mortality rate, you write "This has everything to do with late diagnosis, inadequate treatment for the newly diagnosed patients." Can you clarify? Do you mean "inadequate treatments if you're diagnosed late stage?" Or perhaps many of these folks are treated at all but rather are dealing with kidney failures? What about high-risk cytogenetics...also an area where treatments are inadequate? You wrote "More on this subject later" so I'll wait.

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Gary Petersen link
7/5/2016 11:02:37 am

Jack, Myeloma UK reported it takes almost a year to go from first symptoms to diagnosis, and if left untreated life expectancy for myeloma patients is just 7 months. Therefore, almost 25 percent are dead at diagnosis. Of course those with high risk disease will be a larger population of the 30%, however if the are 15% of the population and half are still alive at 2 years it could only represent 7% of the 30%. Gary

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Sierra mangus
6/13/2018 02:49:32 pm

Hi my husband Robert was just 36 healthiest strongest man ive ever known .He was 6 foot 2 and 200lbs. He had a lot of back pain and we went to about 4 or 5 different hospitals and cpuntless docptrs begging them for help. They all turned us away and said he showed "drug seeking behavior" he would go to them in tears this big strong man crying begging for help . nobody helped. About 6 months to a year later finally someone looked at him noticed he weighed 130 lbs and shrunk to 5 foot 7. When they found it he had 14 fractures in his spine and was 80 percent full of myeloma. Broke my heart. Now as its 2 years later hes gone thru 14 rounds of chemo . a sct. That failed last year because his doctors didn't give him anything at all for maintenance * revlimid. Nothing said he slipped thru the cracks and pf course one year to date post trans. It came back. With a vengeance. He went from light chains at 17. To numbers in the 2000. 2 weeks ago his horrible doctors told us if he left without taking chemo that day he would be dead in 2 weeks. I couldnt believe it. He got his weight back to 170 .Feels pretty good most the time. Is this possible . how could it be. When he was diagnosed his numebrs were at 33000...I'm currently trying to get in to a car t cell therapy clinical trial. I just am terrified I don't want to lose my best friend snd father to our son . Any and all advice would be incredibly helpful. I'm trying to get into Dana farber. His docs have used velcade they also say hes revlimid resistant. Hes done carfilzomib elotouzamaub Pomalidimide thalomide dex hes done so many things I'm scared there isnt much left except dara. Which he has to fail to go to cart trial apparently . any help please thank u

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