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Multiple Myeloma Mystery -  Where's Barlogie?

9/25/2015

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Where's Barlogie?  It was May of 2015 when I first mentioned Dr. Bart Barlogie  was to leave UAMS, and in July I was able to confirm from many sources Dr. Barlogie would be practicing at Mt. Sinai in New York in September.  But then it was like he fell into a black hole, nothing to confirm the move from Mt. Sinai until yesterday.  As Yogi Berra was known to say, "It ain't over till it's over!"  So now it is official official, Dr. Bart Barlogie will be practicing as the Director of Research at Mt. Sinai in New York City.  The press release stated the following:

(New York – September 23, 2015) – Bart Barlogie, MD, world-renowned myeloma expert who introduced the first curative therapy, a multi-drug regimen known as Total therapy 3, for multiple myeloma joins the faculty of Tisch Cancer Institute of the Icahn School of Medicine at Mount Sinai (ISMM), one of the elite cancer centers designated by the National Cancer Institute (NCI). Dr. Barlogie will serve as director of research in the Myeloma Program led by Sundar Jagannath, MD, Professor of Hematology and Medical Oncology at ISMM

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“We are extremely excited for Dr. Barlogie to join us as he brings a wealth of expertise and innovation in myeloma research,” said Steven Burakoff, MD, Lillian and Henry M. Stratton Professor of Cancer Medicine and Director of The Tisch Cancer Institute at Mount Sinai. “With him and Dr. Jagannath at the helm, Mount Sinai will have the country’s premier myeloma program.”


You can read the entire press release if you CLICK HERE.  One of the biggest questions of patients including myself is as Director of Research, will he be seeing existing patients and will he take on new patients.  In the press release this is not mentioned once.  So to obtain clarity I reached out to Dr. Barlogie and asked him a series of questions.  Those questions included the following.

-The press release did not say you would see old patients or can take on new patients. If you will be seeing patients, when does or did this start.

-How or who would an old or new patient contact to see you. Have you had a number of your old patients follow you to Mt. Sinai.

-As Director of Research will you be focusing on high risk myeloma only or tweaking the TT protocol, or looking for new immuno therapy for low and high risk?

-For me a big question will be cost of care, I will follow you if my new Medicare and BCBS D and F will cover most of the cost at Mt. Sinai, and how this compares to UAMS where I would opt to see Dr. van Rhee.  I believe he still is in line with your thinking on treatment philosophy? Who would I talk to at Mt. Sinai to find this out what would be covered?

If you have corresponded with Dr. Barlogie you will find him to be direct and use as few words as possible.  One word reply's like Yes, Handle, No, seem to be integral to his vocabulary.  So when I got a multiple word reply I was pleased. 

Dr. Barlogie's reply,
"Hi gary. I had assumed you would see me at Mt. Sinai. Seeing old and new patients and doing what I used to do.  Emails [email protected], [email protected]
Let me know. Bart"

OUTSTANDING NEWS!  So for those existing patients who want to follow Dr. Barlogie or a potentially new patient can contact him at the emails listed above.  My other thoughts about this major move include the following.  With Dr. Barlogie joining the myeloma team led by Dr. Jagannath a former colleague,  New York  now has one of the worlds most exceptional myeloma teams.  Patients from Little Rock who want to follow Dr. Barlogie have little to worry about in that Dr. Jagannath surely has a similar support staff as was available at UAMS.  In addition, Dr. Barlogie will be working on high risk myeloma, which I believe is the key to cure for all myeloma.  To think he would not be in the mix of doctors trying to solve high risk myeloma would be disastrous to the myeloma cure effort.  I believe Mt. Sinai will be the East Coast equivalent of UAMS.  If you stay with UAMS or go with Dr. Barlogie you can expect the same exceptional care, and if low risk you will have a 50 to 60 percent chance of CURE.  Just like the Myeloma Crowd Research Initiative, Dr. Barlogie believes if we cure high risk myeloma we cure all myeloma. 

Good luck and God Bless your Myeloma Journey/ [email protected]

For more information on multiple myeloma CLICK HERE and you can follow me on twitter at: https://twitter.com/grpetersen1


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The Myeloma Road Map To Improved Survival -  GEP (Gene Expression Profiling)

9/10/2015

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Caryn Anderton, the Director of Marketing for Signal Genetics, was kind enough to provide a blog post on Gene Expression Profiling.  It is titled  "What's in your Genes?, and follows my brief introduction.  The best and most knowledgeable and progressive myeloma specialists have embraced risk assessment  to help map the best and most appropriate treatment for their myeloma patients.  I am often shocked to find out many myeloma patients have no idea whether they are high or low risk, or what chromosome abnormalities they may have.   I can only assume one of  several reasons for this to occur--  the most likely being doctors and patients do not know where to get the test completed,  the doctors do the test and just do not see the need to educate their patients, or they do not do the testing from a lack of experience with myeloma.  The  European Myeloma Network recommends Gene Expression Profiling for multiple myeloma patients.  This recommendation came in March of 2014 and you can read about it if you CLICK HERE.  GEP is also included  in the U.S. National Comprehensive Cancer Network and the International Myeloma Working Group guidelines. Caryn's in depth blog post follows.

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Good luck and God Bless your Myeloma Journey/ [email protected]

For more information on multiple myeloma CLICK HERE and you can follow me on twitter at: https://twitter.com/grpetersen1


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    Author

    Gary R. Petersen
    [email protected]
    CLICK HERE for my myeloma journey

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