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No Cost to You - Register Today for the MCRI 12-Day Challenge. Each Social Media Share Raises Money and Awareness for Myeloma Research.   By Jenny Ahlstrom

10/21/2015

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Thank You, Thank You, Thank You.  With the support of you the Myeloma Patient Commmuinty we raised $51,000 to fund research for OUR CURE.
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 We have been given a unique opportunity to get together as patients, family, friends and caregivers to raise research dollars and awareness for multiple myeloma through our social media actions.

The 12-Day MCRI Challenge will help each of us take specific actions that will directly impact our own outcome or the outcome of someone we love with multiple myeloma. Through a united team effort, the MCRI 12-Day Challenge will allows us to provide awareness, education, and important research dollars to accelerate a cure.

As the second phase of our Myeloma Crowd Research Initiative fundraising campaign, we’re announcing our inaugural “Can’t Wait for a Cure MCRI 12-Day Challenge,” a campaign that lets YOU take action to help myeloma patients. Takeda Oncology and Signal Genetics have agreed to pay $1 for every social media impression that is associated with one of our challenges. Our goal is to reach over 50,000 impressions in 12 days. We have a short window to take advantage of this opportunity and 100% of this money goes to sponsor the two MCRI myeloma research projects.

Here’s How it Works

1. Register

Starting today, you can register to join the Myeloma Crowd MCRI 12-Day Challenge. We are scheduled to start the challenges on Monday, October 26th. We’ll keep you up-to-date on the daily challenge, track your social media shares and tell you who won the prize of the day. Our goal is to have thousands of people taking action – patients, caregivers, siblings, grandkids, long-lost friends and anyone who knows and loves a myeloma patient!

                       CLICK HERE TO REGISTER

 2. Do the Daily Challenge for 12 Days

Beginning on Monday, October 26th, we will post/email a daily challenge for 12 consecutive days. The challenges are simple: read an article and share it on social media, perform a simple act of service, or learn about a key topic that could change the course of a patient’s care. Do the challenge.

3. Share the Challenge on Social Media

After you’ve finished your daily challenge, please share the challenge link on your social media with the hashtags #discovermyeloma, #mmgenetics and #curemyeloma. Our goal is to get over 50,000 impressions by the end of the 12 days. Don’t worry – once you register we’ll send you a daily email with simple examples you can copy and paste into your social media to share once you’ve completed the challenge.

4. Help Earn Funds for Myeloma Research

Through Your Actions For each action you take, our generous sponsors, Takeda Oncology and Signal Genetics will donate $1 to the Myeloma Crowd Research Initiative. Your small and simple actions will not only educate, but will also bring tens of thousands of dollars to myeloma research!

Our host sponsor Takeda Oncology is donating tens of thousands of dollars to make these challenges meaningful for patients and research. They provide amazing support of myeloma awareness and are a world class supporter of patients and patient advocacy!

Signal Genetics is a participating sponsor and in addition to their donation amount has has granted a FREE MyPRS test ($2900 value) as one of the prizes. Fantastic!

Thanks also to iHeart Media/94.1 KODJ and Dr. Guido Tricot and Dr. Robert Orlowski for their generous donations of tickets and time for our prize locker.

5. Earn Prizes

For each challenge, we will randomly select one winner from the participants of that day’s challenge. You must be registered either through the registration button above or the Time Machine phone app to be included in the raffle for this daily prize. The winner will be announced on the day following the challenge. Additional prizes are also available with the use of the app described below.

If You’re Tech-Savvy
If you, your kids or grandkids are tech-savvy, you can download an app called Time Machine on your smartphone to help you track your activity. Don’t do any of the challenges just yet! We are going to start them together on October 26th maximum impact. Here’s how to use the app:


  1. Download the Time Machine App on your phone
    GET TIME MACHINE ON IOS
    GET TIME MACHINE ON GOOGLE PLAY
  2. Find our campaign called “Can’t Wait for a Cure, Myeloma Crowd”
  3. Login with Facebook or Twitter. This is how you will share the actions on social media
  4. Click on “Do This”
  5. When we post the challenge, do it in the app. The app will walk you through the steps to share your action on social media.
                                            
                                                   REGISTER TODAY


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We Can't Wait For A Cure! If You Can't Give You Can Still Be A Myeloma Soldier!

10/13/2015

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PictureIn honor of all those who have lost their battle with myeloma.
I  can not wait for a myeloma cure because we just lost a very special person in our IMF support group, and I just want this to STOP.  We have a new initiative which is positioned to find a cure for high risk myeloma and I feel it is our best chance for a cure for all myeloma.

 One of our biggest issues with achieving our fund raising goals is best described by a patient who I sent a letter introducing him to the Myeloma Crowd Research Initiative.

He writes, "
Thank you for keeping me up to date with your emails and activities schedule.  I pray for you all and for the great success of your movement to help find a cure for Multiple Myeloma.! 

I wanted to bring to your attention that I am currently fighting Multiple Myeloma myself.  I was diagnosed in December of 2011 with 12-fractured vertebrae and stage-3 Multiple Myeloma. I lost 4-inches of height, endured 32-sessions of Radiation treatments, went through 2-stem cell transplants and of course I am still taking the chemo cocktail and doing the Aredia infusions in hops of strengthening the bones in my back.! 

Now, I am only telling you this to say that I am obviously sympathetic to your cause.!  I wish that I could donate and show my financial support.  I imagine you would agree, that our fight is not an inexpensive challenge.!  I would gladly be a "foot-soldier" to ask others to donate but otherwise my pockets are as empty as my cupboards. 

I wish you the greatest success.!  We are warriors in the most dangerous of battles and it is critical that we soldier on.!  I applaud and salute you.!   Be Safe & Be Blessed,"

So if you can not give you can be a myeloma foot-soldier and start your own myeloma fund raising page if you CLICK HERE.  However, if you can contribute, you can go to my fund raising page by CLICKING HERE.

Pat Killingsworth, author and patient advocate just wrote an exceptional article about this initiative and I highly recommend it and if you CLICK HERE you can read it.  It will help to clarify how important this is to the myeloma patient community.  We can do this, we just need myeloma soldiers to "soldier on".

Good luck and God Bless your Myeloma Journey/ [email protected]

For more information on multiple myeloma CLICK HERE and you can follow me on twitter at: https://twitter.com/grpetersen1

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    Author

    Gary R. Petersen
    [email protected]
    CLICK HERE for my myeloma journey

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