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This Weeks Myeloma Highs and Lows

4/6/2015

4 Comments

 
Hot Update Bart Barlogie will not retire but will be leaving to start a new practice elsewhere.  WOW! See below

The High

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Bart Barlogie will be retiring as of the August 31, and be able to buy a new Harley and leathers and spend a well deserved victory lap into the sunset.  I received a letter from Dr. Morgan announcing the retirement and what a wonderful and happy sendoff was in the making for a friendly and harmonious separation.  Dr. Barlogie is by far the the most influential, inventive, driven, and patient centric myeloma specialist in the world, and I can not estimate how many extra years of life he has provided for so many.   Dr. Barlogie is my doctor so I am so heartbroken to see him go and wish he and his family a wonderful future.  Thank You Bart for saving my life and so very many more. 

The Low

A recent blog post has cast some doubt as to just how harmonious the split actually is.  Pat's blog post outlining this can be seen if you CLICK HERE.  It states that a number of patients have contacted Pat and said that the Kumbaya spin on this separation is a lot more than currently meets the eye.  I think we will be learning more about this in the near future, and I hope it does not become another "Needs to Spend more time with his family", or "Chose to pursue other interests" situations.  That would just be so sad for Bart and for UAMS.

Hot update - A recent blog post by Nick Van Dyk a friend and patient of Dr. Barlogie confirms,  "
Bart is "not retiring" but will be setting up shop elsewhere."
You can read Nick's logical evaluation of the reasons for the split and the obvious considerations each of the patients who have committed their treatment to the Total Therapy regimen will now have to reevaluate for their ongoing care if you CLICK HERE.

The High

You can help yourself survive myeloma!  The MCRI (Myeloma Crowd Research Initiative) will air another of the 10 finalists for 
consideration for funding of the best possible clinical trial for high risk myeloma.   Most all myeloma becomes high risk and as a result a cure for high risk disease will mean a cure for all myeloma. 
You can help to pick and fund the most promising clinical trials in the world for myeloma.  MCRI High-Risk Myeloma Series: Dr. Guenther Koehne, MD, PhD, MSKCC, a T cell approach showing success even in plasma cell leukemia and now for use in myeloma. Tuesday, April 7 @ 1 pm EST  Call In by Phone to Listen Live: (347) 637-2631 or Listen Live Via Compute



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Myeloma Patients, Caregivers, and Friends have all provided songs of hope and love to Cancer Patients.  If you have not heard it, when you do it will make your eyes leak. The Songs For Life 2015 album is a crowdsourced music project that was created with love by artists and singer-songwriters that have donated their time and music to help find a cure for cancer. The artists on the album were selected by the community and judges based on dozens of great entries. More than half of the artists on the album are cancer survivors themselves and understand how challenging the road can be for patients.  To hear some of the songs or purchase the recordings CLICK HERE.

All of the proceeds of this album go to cross-cancer research initiatives sponsored by the CrowdCare Foundation. If you are asking what you can do to help move research forward at a faster pace, this is a perfect answer. The Songs For Life album is also an inspiring and ideal gift for friends or family members who are struggling in their fight against cancer.

Good luck and may God Bless your Cancer Journey.   For more information on multiple myeloma survival rates and treatments CLICK HERE and you can follow me on twitter at: https://twitter.com/grpetersen1

4 Comments
Mark
4/6/2015 09:54:37 pm

This opens up some possibilities. Maybe he could go to LA and team up with Berenson!

Reply
Gary Petersen link
4/7/2015 12:30:19 am

Mark, Now that would be an Odd Couple! Although they do say opposites attract.

Reply
Mr Kyaw Htet
4/23/2015 01:19:18 pm

Dear Gary Peterson,
My name is Kyaw Htet from Myanmar . I want to say you " Thanks You so much for MM informations"
My elder brother has MM . He is 48 year old . His kidney is normal . But bone T12 , L2 broken but no press spine . Treatment in Burmungrag Hospital. He finished 2 cycle Chemo ( Velcade and Daxametersone) . In his diagnosed, M Protein level 7.3 , after 1 cycle 4.9 (40% reduced).
Sir please give me idea " How is stem cell transplant in Thailand ? Let me know good doctor for Multiple Myeloma in Asia Country ?
Can control Multiple Myeloma by Chemo ( Velcade)?
My brother is hero of our family. He is leader of our family business . Our family very worry for him .
Please which country or doctors best recovery long life for Multiple Myeloma?
Thanks You So Much Sir .
With Regards ,
Kyaw Htet

Reply
Gary Petersen link
4/24/2015 12:37:38 pm

Kyaw, your brother is so young and that usually patients under 49 years of age live twice as long as those of the average age of 69. It would be good if your brother was given a FISH test to determine if he is high or low risk. Low risk is 85% of patients and is easier to treat. I am sorry to say I do not have a lot of knowledge of the quality of treatment in your area. Their is only one transplant center in Thailand which is part of the CIMBCR group of transplant centers. It is at the link: http://www.cibmtr.org/About/WhoWeAre/Centers/Pages/index.aspx?country=Thailand The IMF International Working Group has one doctor from Thailand who is in the group. This group of doctors tend to be very knowledgeable of the most up to date treatments. That doctor is Weerasak Nawarawong, MD, Chiang Mai University, Chiang Mai, Thailand.

Each and every myeloma patient can and often does respond differently to various therapies. Some may respond well with Velcade Dex. However, based on the genetic risk factors Mayo clinic has set up a mSmart program and you will understand more if you review it at the link: http://nebula.wsimg.com/630f693ce6ec40594a3ed0e983a0ca7d?AccessKeyId=A0994494BBBCBE4A0363&disposition=0&alloworigin=1

For younger patients like your brother I often suggest Dr. Barlogie of UAMS, Dr. Hari of Medical College of Wisconsin, or Dr. Guido Tricot of the University of Iowa. All in the USA and all who try for the cure. They would do induction, one or two transplants, consolidation, and maintenance. The USA has the most new drugs approved for treatment of myeloma. Good luck and may God Bless your families myeloma journey.

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    Gary R. Petersen
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