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Shouldn't We Be Improving  AFFORDABLE Access To Life Saving Drugs!  Most Else Is Just  BS (Bogus Spin)!  Part 1 Of A 4 Part Series

12/21/2019

4 Comments

 
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The major components of the new drug plans in the House focuses on Drug Pricing, and the Senate's bill on pricing really does not even confront the Elephant in the room, which is the lack of negotiation of Medicare Drug Prices.  However, both bills have one thing which will improve ACCESS, which is the cap on out of pocket costs, the House at $2000 and the Senate at $3100.   So what is the Bogus Spin?  There are 3 major categories of BS (Bogus Spin)



- Reducing Negotiated Drug Prices will improve  AFFORDABLE ACCESS to life saving drugs.
- New Drug innovation will be stifled if Medicare negotiates price.
- We have the BEST health care system MONEY CAN BUY.

I had planned to do a three part YouTube broadcast on these three elements, but everyone was focused on other government business(impeachment).  I think it is only logical to start this series after the holidays.  However, I believe I can outline some of the logic beforehand.

Reducing Negotiated Drug Prices will improve AFFORDABLE ACCESS to life saving drugs.

Most private and government insurance (eg. Medicare, Medicaid) base the copay at a percentage of the List Price, not the Negotiated Price.  If the negotiated price goes down by 50% the list remains the same so the copay does not change one bit!  Copay must be changed to a percent of  net  pricing. 

The Insurance companies increase the copay % as the price of the drug goes up.  They call it Tiers, and I think they need to change the spelling to TEARS.  Tier 1 (preferred generic drugs)has a very reasonable copay of $5 to $15 per prescription, but in higher cost drugs in Tier 4 and the Specialty Drug Tier it is 25 to 33%  For cancer drugs this can represent $3000 to $5000 per month. I have myeloma and the one drug which is used in most all treatment regimens is Revlimid, at an out of pocket cost of $14,000 per year.  See the graph below.

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Affordable is a major key to this entire argument.  Is it affordable to all Americans?  I say that is so much BS(Bogus Spin).  It is not affordable to most seniors, nor the middle class, the needy, and minorities.  Let me just talk for a minute about very sick seniors!  The ones with heart disease or cancer.  The number 1 and 2 killer of Americans.  According to the Kaiser Family Foundation the average income of a Medicare Beneficiary was $26,200 in 2016.  To be covered for the 20% copay of Part A & B, they would need to have Part G or F as well, and include Part D for drugs.  Cost for these insurance premiums is $5000 each year and with one drug like Revlimid at a copay of $14000, it comes to a total of $19000.  This is the equivalent to Senior Genocide, but with all cancers a slow agonizing death. Over 600,000 Americans die of Cancer each year!  Just for comparative purposes this contrasts to the costliest war in US history, the Civil War, where 620,000 soldiers died over a period of 4 years. 

New Drug innovation will be stifled if Medicare negotiates price.

If you were provided a free lunch everyday and it was excellent food, why on earth would you pay for your own?   Not having to negotiate price is the "ART OF THE NO DEAL".   Drug companies must negotiate prices with all major industrialized nations, and private insurance companies and PBM's(Pharmacy Benefit Managers), but for everything they lose in these negotiations can be made up by just raising list prices which Medicare will pay by law!

The NIH (National Institute of Health) provides billions of dollar to fund the development of new drugs, and academic institutions provide basic research for drug development.  Frequently, this work is then developed by very small companies which do not have the capital to spend the billions to get FDA approval.  If they have a great idea, they usually are purchased or license  the drug to a large drug company, which has the funding to bring it to market.  The two blockbuster myeloma drugs, Thalidomide/Revlimid(Celgene)and  Velcade(Takeda) were developed by very small companies. Celgene was very small when it licensed the use of Thalidomide from Rockefeller University, and Velcade was first developed by a small biotech ProScript to treat muscle weakness and muscle loss associated with AIDS and muscular dystrophy and ultimately was purchased by Takeda.

To me the biggest barrier to new drug development is the lack of protections for small bio tech firms which have become the target of Illegal and criminal stock market manipulation.  Small companies can easily be forced into bankruptcy by Capital Vultures who have found easy prey in small and vulnerable biotech firms.  Many companies have been devalued by as much as 99% in just 5 years.  How many life saving drugs have not made it to market because of these heartless and morally bankrupt animals who feed off the dead and dying?  I explain this in a 3 part series and you can read it if you CLICK HERE.  Two prior blog posts on this major problem are as below, just click on either of the following story headings.


What If The New Cancer Drug Pipeline Runs Dry? No New Cancer Drugs! Patients DIE!
The Proof Capital Vultures Are Destroying Baby Bio Tech Companies Before They Have Time To Create New Drugs!



The USA has the BEST health care system MONEY CAN BUY.

This one is very hard to argue with unless we look at the definition of the word BEST.    If best is the one where you can get the best care in the world only IF you have all the money in the world or have a drug and health plan with affordable co-pays, then it is hard to argue against this statement.  If best is defined by any other measure, best life expectancy, care for all citizens, care for the elderly and needy, most cost effective per citizen, non discriminatory, lowest infant mortality, ad infinitum, then we have a very long way to go. 

Each of these points will be discussed in my 4 part Series titled "The Bogus Spin Report" or in short "The BS Report".
  Good luck and God Bless your Cancer Journey/ [email protected].

For more information on multiple myeloma CLICK HERE and you can follow me on twitter at: https://twitter.com/grpetersen1
4 Comments
Mark
12/22/2019 04:42:29 pm

How is it going? I just took a quick look to see if you were still posting. It is great to see that you are still providing a voice for the myeloma community. I took a quick look at the abstracts from ASH and unfortunately it seems they are still a long ways away from having patients like me - high risk patients considered cured and off all drugs since my allo back in May 2011.

Best of wished for you and the family and enjoy the Holiday season!

Mark

Reply
Gary Petersen link
12/28/2019 08:18:20 am

Good to hear from you Mark, Looks to me like we continue to build the bridge to the cure, but are still few who have achieved it. The elements of the bridge are getting bigger with new last chance drugs getting over a year in OS. Still sucks but OS(diagnosis to death) continues to grow and in bigger steps. Hope you and yours have a great Holiday Season.

Gary

Reply
Craig
12/27/2019 02:29:07 pm

I didn’t realize I “have all the money in the world”. I’m glad I didn’t pay too close attention to the first two arguments.

Reply
Gary Petersen link
12/28/2019 08:28:32 am

Craig, I too was blessed with my wife's excellent teachers union provided health and drug coverage, and because I had dialysis dependent kidney failure I got Medicare as a secondary. So I was one of the fortunate few with outstanding coverage. In addition, I learned about the co-pay assistant programs provided by organizations like LLS. I hit the USA Heath Care and Drug Brass Ring. Obviously you did as well. I had heard that 50% of all bankruptcies are due to health causes, so apparently there are SO many not as fortunate as you and I. Good Luck and may God Bless your families cancer journey/Gary

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    Gary R. Petersen
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    CLICK HERE for my myeloma journey

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